The Activation of My Cochlear Implant

September 21st, 2009. Posted in About Being Deaf.

August 2006


I wear my hearing aid every day from my waking moment to the second I go to bed… unless I have a headache or want to ignore someone, haha. You get the point anyways.

I remember the day when my cochlear implant was activated for the first time which was a month after my surgery. We arrived at my doctor’s office and they led us to a small room. My parents and Tyler were with me with this lady, M, who did my activation.

M had me put my cochlear implant on and hooked it up to the computer. I had to tell her when I heard the beeping sounds and to tell her if it was comfortable, loud, or too loud/uncomfortable. After doing that for a few minutes M warned me she was going to turn my cochlear implant on for the first time.

My hearing aid was off so at this point I wasn’t hearing anything until M turned it on. My parents immediately started talking so I could hear them – it was almost like they were cooing at me. It quickly turned to be an unpleasant experience. I could hear my parents but their voices sounded so weird and I hated what I was hearing. Everything sounded mechanical.

M asked me to try talking so I could hear my own voice and I refused. I didn’t want to disappoint myself.

What if I hated how I sound? Was it really how hearing people hear me?

M told me she was going to turn up the volume and keep turning it up slowly until I told her it was uncomfortable. At this point I didn’t know what comfortable felt anymore. When M turned up the volume it sounded like a lion roaring but loud & louder.

We did some testings where she would say a month behind a piece of paper and I had to listen and tell her what month she was saying. I didn’t do too well and got a lot wrong unlike with my hearing aid I get them all correct. M assured me it was just the beginning and my brain was “waking up” and I would get used to it.

We left the office and I did not wear my cochlear implant. My parents & Tyler tried getting me to wear it so I can practice and get used to it. It was really unpleasant when I put my cochlear implant on as the roaring sound occurred for a minute then subsided.

I slowly got used to wearing it but I wanted to wear my hearing aid too and I did. I was hearing things that I could never hear before or was not that clear and sharp until now. With all the traffic noise going on I could even hear my blinkers!

There was one problem. I had to learn how to tell where the noises were coming from. With my cochlear implant – it makes me think all the sounds are coming from the left side. This was the main reason why I wear both my hearing aid and cochlear implant at the same time.

I had to get used to the fact that when my cochlear implant battery dies, it just dies/turns off without any warning. I hated this. My hearing aid doesn’t do this – it slowly dies so I have time to change my battery. The nice thing is I have rechargeable batteries for my cochlear implant that are good up to 8 hours so I have 8 hours before it will need to be recharged.

Tyler has helped me so much when I would constantly ask him what that noise is. I still do now sometimes. I’ve learned to love and hate some sounds. I hate the sound of people rubbing their hands. I can even hear Tyler doing that behind me in the grocery store! The other night Tyler was talking to his Dad on the speakerphone and I could hear his Dad talking from the other room. I’m always amazed at the sounds I hear all the time.

Just because I can hear sounds clearly now does not mean I can 100% understand everything now. I’ve had some people tell me that they couldn’t wait to have a phone conversation with me after my activation. Learning how to understand people on the phone is a difficult thing since I can’t lipread through the phone…obviously.

I can call people and do all the talking but then I’d have to hang up before they even talk. I do that sometimes with Tyler if he’s not responding to his text messages. I’d call him and say what I need to say then hang up and he would text me back. Lame I know, but it works!

Feel free to ask me any questions or for clarification if I confused anyone on this long post!

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  • http://wearingmascara.com Julie @ Wearing Mascara

    This is such a great and honest post! I love hearing this from someone older because the only thing I do is work with the kiddies all day :-) Love your perspective! xoxo

  • Elizabeth

    I’ve thought about getting one in my left ear, especially since there is no hearing there at all. If I do anything, I would want it to be after I have kids, or at least the first one. I think all the changes at once would be overwhelming–heck, I went crazy for a while after switching to a digital hearing aid from analog! Eric had to reassure me that it is normal for the air conditioner to make noise…who knew? Haha…

  • http://www.luxechandelier.com steph anne

    @Elizabeth – that’s awesome that you’re thinking about getting one. You’ve got nothing to lose anyways – I didn’t have any hearing in my left ear either. I refuse to get another cochlear implant on my right ear. I’d love one to be able to balance the sounds but I love what I hear with my hearing aid. I tried digital hearing aid in college before I got my cochlear implant and I absolutely hated it! I’m going to die with my analog! :)

  • http://somewhatvoluble.com Megan

    Wow; thanks for sharing this with us!

    I hope your experience with the cochlear implant continues to get better as time goes on. They should really work on a longer-lasting battery! Maybe a 12-hour one. Does it take long to charge?

  • http://www.kylaroma.com Kyla Roma

    I love your posts about being deaf, they are an incredible reminder of how differently we all perceive the world and the little things to me that I would never think about (all sound coming from the left?? Woah!).

    I love your blog, and I love the things that make you different. You’re just too wonderful. =)

  • http://yeahhonestly.blogspot.com stefanie

    My cousin has a cochlear implant and he used to hate it. But he has gotten so much better and seems a lot more cheerful. He is even going out to clubs now.

    Thanks for sharing your story with us!!!

  • http://melisalynn.net Melisa

    Thank you for sharing your story. What a great post. I Learned something new today :D

  • Shannon

    Two years ago I finally got new hearing aids. My old ones (analog) were 24 years old and my audiologist was soo suprised they kept going and going like the energizer bunny! I was very hesitant to switch to digital, but knew I had no choice and wanted to make the switch before I was forced to. It took time getting used to them and I had to go back several times for them to make adjustments, but now that I am used to them, I love them!

  • http://www.luxechandelier.com steph anne

    @Megan – In fact they do have a longer-lasting battery that’s also rechargeable but I have these that were covered by my insurance company. When I need new ones I will probably order the longer-lasting ones. No, it doesn’t take too long to recharge. I have 4 of them so I can recharge while I’m using another battery with the PowerCel charging station (http://tinyurl.com/m86sr4)

    @Kyla Roma – You’re too sweet & kind! Thank you for the compliment. :)

    @Stefanie – That’s great!! I even know some people who have gotten a cochlear implant at an early age by their parents’ decision and they don’t wear it anymore. Some want to have surgery to have it removed.

    @Shannon – It’s amazing how long the analog can last for! My sister has a digital hearing aid and I tried hers. I know it’s not programmed for me but still – I hated it. Let’s see how long I last for with the analog because as of right now I’m going to die with it, haha.

  • Melissa

    I like the part where you said you could hear your car blinkers :) I remember the first time Zach could hear birds with his hearing aids. He switched to digital hearing aids a couple of years ago and doesn’t like them as well as his old analog pair either. Maybe they need to bring back the analog ones!

  • http://stateiamin.com Erin

    Thanks for sharing this with us! I’ve heard a couple other people talk about their experiences getting a cochlear implant as an adult. It’s really interesting to me!

  • http://www.prettysandyfeet.com/ katelin

    wow, thank you for sharing this. it’s all so interesting and informative and definitely nice to know what people’s experiences are like.

  • http://www.whatthevita.wordpress.com Elisa

    was going through the comments at younghouselove (trying to putt off doing any actual work) and found your comment there and I was like, oh another deaf reader, very cool!

    like your blog – and i absolutely LOVE your striped wall!! I can see you use a lotta gray – that’s a common color in our new house as well :)

  • http://stephanywrites.blogspot.com Stephany

    What a great post to start reading your blog on! This is just amazing and it’s simply insane how far science has come along in recent years.

    And, honestly, I love your pictures for your categories. I’ve never seen that on a blog before! So creative!

    Anyway, great blog! I’m sure I’ll be back. :)

  • http://shechronicles.posterous.com/ She

    I’ve never really known of the experience a deaf person goes through in order to hear sounds, so for me this entry was very enlightening.

    I do have a question, if you don’t mind. You mentioned your hearing aid slowly dies, how long is the life of an average hearing aid?

    You have a great blog going here, I’ll definitely be back.

  • Stephanie

    Every time you blog about your experiences about being deaf it sucks me in and I try to imagine how that would feel and how different it is.

    I hope that didn’t sound bad. It’s a good thing.

  • http://www.luxechandelier.com steph anne

    @She – It’s the hearing aid battery that dies – not my hearing aid itself. I’d die if my hearing aid broke or just flat out died on me! The battery lasts maybe more than a week… it really depends. The hearing aid itself can last years. I had my first one for 18 years – and I just got a new one a few years ago. I do need to get new ear molds every once a while. Omg, I love that tingly feeling of getting new ear molds!

  • http://andthethreebears.blogspot.com Alycia

    Wow. No confusion. Just fascination.
    Thankyou so much for sharing. Things like talking on the phone I’d have never contemplated being difficult. Makes sense though.

  • http://laurenfromtexas.com Lauren From Texas

    Oh honey this is awesome!! And I love that your hubby is such a huge support. Thanks for sharing so honestly with the rest of us.

    xo

  • http://accidentallygraceful.wordpress.com accidentally graceful

    Hey there. LOVE your striped walls and Luxe effect.

    I’m a bit behind, but I just found your blog via Jersey Girl. And it’s funny – I got a cochlear implant in 2003. But my reaction was different. I hear abnormally well with my hearing aid in my left ear, but haven’t heard sound in my right ear in who knows how long. It was basically the process of trying to teach my brain how to hear from the right ear, something it had never done.

    I quit. Because it was frustrating me and because I was concerned that I would never hear the same sounds as I would with my hearing aid (a valid concern as my doctor was worried about the same thing prior to the surgery). When I tried to wear both, I ultimately felt like there was a ping pong match in my head and ended up with a headache.

    But who knows. Maybe I’ll give it another shot, since it is in my head. I’m just grateful to even have what hearing I do have left.

    And I wear digital and LOVE it. When my hearing aid broke in May, right before I was about to go on vacation, my audiologist grabbed a new one, programmed it, and three minutes later, I was walking out the door. Thank god for that.

  • http://Callitaclan.blogspot.com Stephanie

    This post is so interesting. I like learning about this from an adult’s perspective, because my little kiddos can’t put it in words. And I find the part about like your analog aids better interesting because now little kids get nothing but digital!

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  • Bianca

    I have lots of experience with my cochlear implant. I had my CI for 14 years, i was about 2 and half years old when i got it. Now I’m 17 and getting a second one on my left ear, I’m nervous because i don’t remember when i had my surgery when i was 2 years old. The surgery is in 3 days and I’m looking forward to hear in both ears. I experienced hearing everything in one ear and the second one will be challenging.

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  • Mark

    Hey,

    Thanks for talking about your activation. It seems like the most realistic thing I’ve read instead of the “happy happy joy joy” stuff you read. Mine’s getting activated on Tuesday and I kind of think it’ll be a little like what you described, even though everyone seems to be telling me otherwise.

    I’m 40 and only started losing my hearing about 6 years ago but it really started going to heck around a year ago. I can still “hear” almost everything in my right ear with a hearing aid, I just don’t understand much, whereas the left (implanted) is pretty much shot. My audiologist and the implant woman are actually going to be programming them both at the same time to try and get the best mix.

    I’ll let you know but thanks for a different take on things.

    Mark